Accepted abstracts for conferences: ESC Congress 2023 in Amsterdam (25-28/08/2023): - Frailty phenotype and cognitive function in older adults with congenital heart disease: results of an international multicentric study (first author: Bo Daelman) EuroACHD 2024 in London (15-16/04/2024): - Fatigue in Adults with Congenital Heart Disease: Associations with Heart Defect Complexity and Clinical Characteristics (first author: Linda Ternrud)
ACHD 2024 in Skamania (28/05-01/06/2024): - Oral presentation on geographic differences in PROs in ACHD (first author Philip Moons) - Poster presentation on the accuracy of the ACHD PRO (first author: Jong Ko)
Nordic Conference on Nursing Research 2024 in Stockholm (02-04/10/2024): - Towards robust nursing research: the need for measurement invariance (first author: Mariela Acuña Mora) - substudy Belgium, Norway and South Korea
ESC Congress 2024 in London (30/08-02/09/2024): - Patient-reported outcomes in 8,415 adults with congenital heart disease from 32 countries: The APPROACH-IS II project (first author: Philip Moons) - Frailty, cognition and patient-reported outcomes in middle-aged and older adults with congenital heart disease: insights from an international multicentric study (first author: Bo Daelman) - Engagement of adults with congenital heart disease in research: Overcoming barriers relating to social deprivation (first author: Rebecca Webb-Mitchell) - UK substudy