The first APPROACH-IS project (2013-2015)
The first APPROACH-IS project was an international, multicenter research project on patient-reported outcomes in adult patients with congenital heart disease, with data collection performed from 2013 till 2015.
This initial project aimed to examine the differences in patient-reported outcomes (e.g., quality of life) of adults with congenital heart disease who are living in different areas around the world. In addition, we wanted to learn more about how potential differences in patient-reported outcomes can be understood.
Researchers and clinicians from 15 countries, across 5 continents participated in this research project. A total of 4,028 patients have been included in the project. More details about the methodology of this project have been described in the paper of Apers et al. (2015). The study protocol has been registered at ClinicalTrials.gov (NCT02150603).
This initial project aimed to examine the differences in patient-reported outcomes (e.g., quality of life) of adults with congenital heart disease who are living in different areas around the world. In addition, we wanted to learn more about how potential differences in patient-reported outcomes can be understood.
Researchers and clinicians from 15 countries, across 5 continents participated in this research project. A total of 4,028 patients have been included in the project. More details about the methodology of this project have been described in the paper of Apers et al. (2015). The study protocol has been registered at ClinicalTrials.gov (NCT02150603).
Presentations
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Awards
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Prof. Philip Moons won the ‘2020 Cardiac Care Associate Research Award’ for his presentation 'Patient-Reported Outcomes in Adults with Congenital Heart Disease who are Recovering after Hospitalization' on the 30th International Symposium on Adult Congenital Heart Disease, organized by Cincinnati Children’s Hospital. The results that were presented were part of the APPROACH-IS study.
Link to the presentation: https://www.youtube.com/watch?=WFFZFtw41Kk&feature=youtu.be |
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The article entitled "Patient-reported outcomes of adults with congenital heart disease from eight European countries", based on data of APPROACH-IS, was awarded one of the best 5 papers published in the European Journal of Cardiovascular Nursing in 2019. Liesbet Van Bulck is the first author of this article.
Read the article: https://academic.oup.com/eurjcn/article/18/6/465/5925274?login=false |
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For the research project entitled: "Illness identity in adults with congenital heart disease: longitudinal trajectories and associations with patient-reported outcomes", Liesbet Van Bulck and her research group won the Magda Dierendonck Award 2021. The project uses data from the Belgian branch of APPROACH-IS.
Read the article: https://onlinelibrary.wiley.com/doi/full/10.1111/jan.14949 |
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Prof. Philip Moons received the 2022 Cardiac Care Professional Research Award of the International Society for Adult Congenital Heart Disease for his presentation entitled "Patient-Reported Outcomes in the aging population of adults with congenital heart disease: Findings from APPROACH-IS" |
Scientific output
Articles in international peer-reviewed journals
1. Apers S, Kovacs A, Luyckx K, Alday L, Berghammer M, Budts W, Callus E, Caruana M, Chidambarathanu S, Cook SC, Dellborg M, Enomoto J, Eriksen K, Fernandes SM, Jackson JL, Johansson B, Khairy P, Kutty S, Menahem S, Rempel G, Sluman MA, Soufi A, Thomet C, Veldtman G, Wang JK, White K, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease. Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart Disease – International Study (APPROACH-IS): Rationale, design, and methods. International Journal of Cardiology 2015; 179: 334-342.
2. Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattson E, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Romfh A, White K, Callus E, Kutty S, Fieuws S, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Quality-of-life in adult congenital heart disease in 15 countries: Integrating population measures and cultural dimensions. J Am Coll Cardiol 2016; 67: 2237-2245.
3. Sluman MA, Apers S, Bouma BJ, van Melle JP, Peels CH, Post MC, Waskowsky WM, Moons P, Mulder BJM. Uncertainties in insurances for adults with congenital heart disease. International Journal of Cardiology 2015; 186: 93-95.
4. Berghammer MC, Mattsson E, Johansson B, Moons P, Dellborg M. Comparison of participants and non-participants in patient-reported outcome surveys: the case of Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study. Cardiology in the Young 2017; 27: 427-434.
5. Caruana M, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Sluman M, Eriksen K, Dellborg M, Berghammer M, Johansson B, Soufi A, Callus E, Moons P, Grech V, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease. Red flags for Maltese adults with congenital heart disease? Poorer dental care and less sports participation compared to other European patients. An APPROACH-IS substudy. Pediatric Cardiology 2017; 38: 965-973.
6. Eaton SL, Wang Q, Menahem S. Determinants of quality of life in adults with CHD: An Australian cohort. Cardiology in the Young 2017; 27: 1571-1576.
7. Rassart J, Apers S, Kovacs AH, Moons P, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Rempel G, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, on behalf of the APPROACH-IS consortium and ISACHD. Illness perceptions in adult congenital heart disease: A multi-center international study. International Journal of Cardiology 2017; 244: 130-138.
8. Bay A, Dellborg M, Berghammer M, Sandberg C, Mattson E, Engström G, Moons P, Johansson B. Patient-reported outcomes are associated with physical activity level in adults with congenital heart disease. International Journal of Cardiology 2017; 243: 174-179.
9. Fogleman N, Apers S, Moons P, Morrison S, Wittekind SG, Tomlin M, Gosney K, Sluman MA, Johansson B, Enomoto J, Dellborg M, Lu CW, Subramanyan R, Luyckx K, Budts W, Jackson J, Kovacs A, Soufi A, Eriksen K, Thomet C, Berghammer M, Callus E, Fernandes SM, Caruana M, Cook SC, Mackie A, White KS, Khairy P, Kutty S, Veldtman G, on behalf of the APPROACH-IS consortium. Regional variation in quality of life in patients with a Fontan circulation — A multinational perspective. American Heart Journal 2017; 193: 55-62
10. Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, on behalf of the APPROACH-IS consortium and ISACHD. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living, and healthcare system factors. International Journal of Cardiology 2018; 251: 34-41.
11. Caruana M, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Sluman M, Eriksen K, Dellborg M, Berghammer M, Johansson B, Soufi A, Callus E, Grech V, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Quality of life in Maltese adults with congenital heart disease: a second look – An APPROACH-IS substudy. International Cardiovascular Forum Journal 2017; 12: 18-23.
12. Holbein C, Fogleman N, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson J, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Erikson K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel G, White K, Khairy P, Kutty S, Veldtman G, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenital Heart Disease 2018; 13: 392-400.
13. Oris L, Luyckx K, Rassart J, Goubert L, Goossens E, Apers S, Arat S, Vandenberghe J, Westhovens R, Moons P. Illness identity in adults with a chronic illness. Journal of Clinical Psychology in Medical Settings 2018; 25: 429-440.
14. Thomet C, Schwerzmann M, Moons P, Apers S, Luyckx K, Oechslin E, Kovacs AH. Self-efficacy as a predictor of patient-reported outcomes in adults with congenital heart disease. European Journal of Cardiovascular Nursing 2018; 17: 619-626.
15. Van Bulck L, Goossens E, Luyckx K, Oris L, Apers S, Moons P. Illness identity: a novel predictor for healthcare use in adults with congenital heart disease. Journal of the American Heart Association 2018; 7: e008723.
16. Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars A, on behalf of the APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD). Physical activity-related drivers of perceived health status in adults with congenital heart disease. American Journal of Cardiology 2018; 122: 1437-1442
17. Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Fernandes SM, White K, Callus E, Kutty S, Apers S, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. International Journal of Cardiology, 2019; 274: 93-99
18. Sluman MA, Apers S, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie A, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Bouma BJ, Mulder BJM, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenital Heart Disease 2019; 14; 362-371.
19. Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Geographical variation in and predictors of physical activity level in adults with congenital heart disease. IJC Heart & Vasculature 2019; 22: 20-25
20. Van Bulck L, Luyckx K, Goossens E, Apers S, Thomet C, Budts W, Sluman MA, Eriksen K, Dellborg M, Berghammer M, Johansson B, Caruana M, Soufi A, Callus E, Kovacs AH, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Patient-reported outcomes of adults with congenital heart disease from 8 European countries: Scrutinizing the association with healthcare system performance. European Journal of Cardiovascular Nursing 2019; 18: 465-473.
21. Holbein CE, Veldtman G, Moons P, Kovacs AH, Luyckx K, Apers S, Chidembarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Lu CW, Cedars A, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Perceived health mediates effects of physical activity on quality of life in patients with Fontan circulation. American Journal of Cardiology 2019; 124: 144-150.
22. Ko JM, White K, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidembarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars A, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Differential impact of physical activity type on depression in adults with congenital heart disease: A multicenter international study. Journal of Psychosomatic Research 2019; 124: 109762
23. Holbein CE, Veldtman GR, Peugh J, Apers S, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Health behaviors reported by adults with congenital heart disease across 15 countries. European Journal of Preventive Cardiology 2020; 27: 1077-1087
24. Moons P, Luyckx K, Kovacs AH, Holbein CE, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman GR, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Effects of cigarette smoking, cannabis consumption and co-use in adults with congenital heart disease from 15 countries. Canadian Journal of Cardiology 2019; 35: 1842-1850.
25. Lévesque V, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Casteigt B, Moons P, Khairy P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease: an international study. Heart Rhythm 2020; 17: 768-776
26. Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, on behalf of the APPROACH-IS consortium and ISACHD. Physical functioning, mental health and quality of life in different congenital heart defects: Comparative analysis in 3,538 patients from 15 countries. Canadian Journal of Cardiology 2020
27. Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, on behalf of the APPROACH-IS consortium and ISACHD. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. European Journal of Cardiovascular Nursing 2020.
28. Van Bulck L, Goossens E, Luyckx K, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, on behalf of the APPROACH-IS consortium and ISACHD. Healthcare system inputs and their relationship with patient-reported outcomes: a study in adults with congenital heart disease from 15 countries. BMC Health Services Research 2020; 20: 496
29. Wang QF, Rouse S, Hay M, MEnahem S. Does previous cardiac surgery predict impaired quality of life in adults with congenital heart disease? World Journal of Pediatric and Congenital Heart Surgery 2020; 11: 304-309.
30. Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes Lpd SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P; of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2020 Sep 19:S1547-5271(20)30894-8. doi: 10.1016/j.hrthm.2020.09.012. Epub ahead of print. PMID: 32961334.
31. Van Bulck L, Goossens E, Apers S, Moons P, Luyckx K. Illness identity in adults with congenital heart disease: Longitudinal trajectories and associations with patient-reported outcomes and healthcare use. J Adv Nurs. 2021 Dec;77(12):4743-4754. doi: 10.1111/jan.14949. Epub 2021 Jul 9. PMID: 34240484.
32. Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15;145:135-142. doi: 10.1016/j.amjcard.2020.12.088. Epub 2021 Jan 15. PMID: 33460605.
33. Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10;19(1):53. doi: 10.1186/s12955-021-01696-x. PMID: 33568120; PMCID: PMC7877115.
34. Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL; APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec;44(6):772-783. doi: 10.1007/s10865-021-00239-5. Epub 2021 Jun 29. PMID: 34185220.
35. Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P; APPROACH‐IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 May 3;11(9):e024993. doi: 10.1161/JAHA.121.024993. Epub 2022 Apr 26. PMID: 35470715.
Conference abstracts
1. Eaton SL, Wang QF, Menahem S. Determinants of quality of life in adults with congenital heart disease; An Australian cohort. Asia Pacific Paediatric Cardiac Society 5th Congress, New Delphi, India
2. Apers S, Kovacs AH, Luyckx K, Moons P. Quality of life in adults with congenital heart disease worldwide: A multilevel study in 15 countries. Circulation 2015, 132 (suppl 3): A12047.
3. Berghammer MC, Mattsson E, Johansson B, Moons P, Dellborg M. Comparison of participants and non-participants in patient-reported outcome surveys: the case of APPROACH-IS. Swedish Cardiovascular Spring Meeting – Vårmöte 2016, Gothenburg, Sweden
4. Thomet C, Schwerzman M, Oechslin E, Kovacs A, on behalf of APPROACH-IS consortium. Quality of life, general self-efficacy and health status in adults with congenital heart disease. European Heart Journal 2016; 37 (suppl 1): 456
5. Thomet C, Schwerzman M, Oechslin E, Kovacs A, on behalf of APPROACH-IS consortium. Patient characteristics and perceived self-efficacy in adult patients with congenital heart disease. European Heart Journal 2016; 37 (suppl 1): 1127
6. Moons P, Kovacs AH, Luyckx K, Apers S, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease. Patient-reported health and its correlates in adults with congenital heart disease from 15 countries. Circulation 2016, 134 (suppl 1): A12222.
7. Bay A, Dellborg M, Berghammer M, Sandberg C, Mattson E, Engström G, Moons P, Johansson B. Patient-reported outcomes are associated with physical activity level in adults with congenital heart disease. Swedish Cardiovascular Spring Meeting – Vårmöte 2017, Malmö, Sweden.
8. Berghammer M, Johansson B, Mattson E, Moons P, Dellborg M. The patients' view compared with the caregiver assessment - alternative truths? Swedish Cardiovascular Spring Meeting – Vårmöte 2017, Malmö, Sweden
9. Eaton S, Wong QF, Menahem S. Is the quality of life of adults with congenital heart disease worse in those who had previous cardiac surgery? An Australian cohort. 7th World Congress on Pediatric Cardiology and Cardiac Surgery 2017, Barcelona, Spain
10. Van Bulck L, Luyckx K, Goossens E, Oris L, Apers S, Moons P. Illness identity as predictor of healthcare use in adults with congenital heart disease. European Heart Journal 2017; 38 (suppl 1): P1525
11. Rassart J, Apers S, Kovacs AH, Moons P, Luyckx K. Illness perceptions in adult congenital heart disease: a multi-center international study. 31st Conference of the European Health Psychology Society, 29 August-2 September, Padua, Italy.
12. Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Fernandes SM, White K, Callus E, Kutty S, Apers S, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Differences in Patient-Reported Outcomes are partly explained by religion in adults with congenital heart disease: An APPROACH-IS substudy. 27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA
13. Holbein CE, Hommel KA, Apers S, Moons P, Veldtman G, and the APPROACH-IS consortium. Illness perceptions and health behaviors in patients with Fontan circulation. 27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA
14. Larsson L, Johansson B, Sandberg C, Moons P, on behalf of the APPROACH-IS consortium. Geographical variation in and predictors of physical activity level in adults with congenital heart disease. European Heart Journal 2018; 39 (suppl. 1): P1236.
15. Berghammer M, Johansson B, Mattson E, Moons P, Dellborg M. Exploration of disagreement between the patient’s self-reported limitations and limitations assessed by caregivers in adults with congenital heart disease. European Heart Journal 2018; 39 (suppl. 1): 2406.
16. Van Bulck L, Luyckx K, Goossens E, Oris L, Apers S, Moons P. Illness Identity and its Association with Absence at Work or School in Adults with Congenital Heart Disease. Circulation 2018; 138 (suppl 1) A15475
17. Van Bulck L, Goossens E, Luyckx K, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Healthcare system characteristics and their relationship with patient-reported outcomes in adults with congenital heart disease of 14 countries. Circulation 2018; 138 (suppl 1): A14480
18. Moons P, Apers S, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Goossens E, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Age and quality of life in adults with congenital heart disease worldwide: Evidence for a non-linear relationship. Circulation 2018; 138 (suppl 1): A14623
19. Van Bulck L, Luyckx K, Goossens E, Oris L, Apers S, Moons P. Absence at work or school is associated with illness identity in adults with congenital heart defects. Abstract book Care4 congress 2019, p76
20. Ko JM, White K, Kovacs AH, Tecson KM, Enomoto J, Moons P, Cedars AM, on behalf of the APPROACH-IS consortium and International Society for Adult Congenital Heart Disease. Sport participation associated with fewer anxiety symptoms in adult congenital heart disease. Circulation 2019; 139 (suppl 1): P313.
21. Ko JM, White KS, Kovacs AH, Tecson KM, Enomoto J, Moons P, Cedars AM, on behalf of the APPROACH-IS consortium and International Society for Adult Congenital Heart Disease. Increased intensity of physical activity during sport participation associated with fewer anxiety symptoms. Cardiology in the Young 2019.
22. Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, on behalf of the APPROACH-IS consortium and ISACHD. Physical functioning and quality of life in different congenital heart defects: Comparative analysis in 3,589 patients from 15 countries. Circulation 2019; 140 suppl 1: A16534.
23. Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, W, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, on behalf of the APPROACH-IS consortium and ISACHD. Patient-Reported Outcomes in Adults with Congenital Heart Disease who are Recovering after Hospitalization. 30th International Symposium on Adult Congenital Heart Disease, 11-13 June 2020, Cincinnati (OH), USA
2. Apers S, Kovacs AH, Luyckx K, Moons P. Quality of life in adults with congenital heart disease worldwide: A multilevel study in 15 countries. Circulation 2015, 132 (suppl 3): A12047.
3. Berghammer MC, Mattsson E, Johansson B, Moons P, Dellborg M. Comparison of participants and non-participants in patient-reported outcome surveys: the case of APPROACH-IS. Swedish Cardiovascular Spring Meeting – Vårmöte 2016, Gothenburg, Sweden
4. Thomet C, Schwerzman M, Oechslin E, Kovacs A, on behalf of APPROACH-IS consortium. Quality of life, general self-efficacy and health status in adults with congenital heart disease. European Heart Journal 2016; 37 (suppl 1): 456
5. Thomet C, Schwerzman M, Oechslin E, Kovacs A, on behalf of APPROACH-IS consortium. Patient characteristics and perceived self-efficacy in adult patients with congenital heart disease. European Heart Journal 2016; 37 (suppl 1): 1127
6. Moons P, Kovacs AH, Luyckx K, Apers S, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease. Patient-reported health and its correlates in adults with congenital heart disease from 15 countries. Circulation 2016, 134 (suppl 1): A12222.
7. Bay A, Dellborg M, Berghammer M, Sandberg C, Mattson E, Engström G, Moons P, Johansson B. Patient-reported outcomes are associated with physical activity level in adults with congenital heart disease. Swedish Cardiovascular Spring Meeting – Vårmöte 2017, Malmö, Sweden.
8. Berghammer M, Johansson B, Mattson E, Moons P, Dellborg M. The patients' view compared with the caregiver assessment - alternative truths? Swedish Cardiovascular Spring Meeting – Vårmöte 2017, Malmö, Sweden
9. Eaton S, Wong QF, Menahem S. Is the quality of life of adults with congenital heart disease worse in those who had previous cardiac surgery? An Australian cohort. 7th World Congress on Pediatric Cardiology and Cardiac Surgery 2017, Barcelona, Spain
10. Van Bulck L, Luyckx K, Goossens E, Oris L, Apers S, Moons P. Illness identity as predictor of healthcare use in adults with congenital heart disease. European Heart Journal 2017; 38 (suppl 1): P1525
11. Rassart J, Apers S, Kovacs AH, Moons P, Luyckx K. Illness perceptions in adult congenital heart disease: a multi-center international study. 31st Conference of the European Health Psychology Society, 29 August-2 September, Padua, Italy.
12. Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Fernandes SM, White K, Callus E, Kutty S, Apers S, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Differences in Patient-Reported Outcomes are partly explained by religion in adults with congenital heart disease: An APPROACH-IS substudy. 27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA
13. Holbein CE, Hommel KA, Apers S, Moons P, Veldtman G, and the APPROACH-IS consortium. Illness perceptions and health behaviors in patients with Fontan circulation. 27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA
14. Larsson L, Johansson B, Sandberg C, Moons P, on behalf of the APPROACH-IS consortium. Geographical variation in and predictors of physical activity level in adults with congenital heart disease. European Heart Journal 2018; 39 (suppl. 1): P1236.
15. Berghammer M, Johansson B, Mattson E, Moons P, Dellborg M. Exploration of disagreement between the patient’s self-reported limitations and limitations assessed by caregivers in adults with congenital heart disease. European Heart Journal 2018; 39 (suppl. 1): 2406.
16. Van Bulck L, Luyckx K, Goossens E, Oris L, Apers S, Moons P. Illness Identity and its Association with Absence at Work or School in Adults with Congenital Heart Disease. Circulation 2018; 138 (suppl 1) A15475
17. Van Bulck L, Goossens E, Luyckx K, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Healthcare system characteristics and their relationship with patient-reported outcomes in adults with congenital heart disease of 14 countries. Circulation 2018; 138 (suppl 1): A14480
18. Moons P, Apers S, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Goossens E, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Age and quality of life in adults with congenital heart disease worldwide: Evidence for a non-linear relationship. Circulation 2018; 138 (suppl 1): A14623
19. Van Bulck L, Luyckx K, Goossens E, Oris L, Apers S, Moons P. Absence at work or school is associated with illness identity in adults with congenital heart defects. Abstract book Care4 congress 2019, p76
20. Ko JM, White K, Kovacs AH, Tecson KM, Enomoto J, Moons P, Cedars AM, on behalf of the APPROACH-IS consortium and International Society for Adult Congenital Heart Disease. Sport participation associated with fewer anxiety symptoms in adult congenital heart disease. Circulation 2019; 139 (suppl 1): P313.
21. Ko JM, White KS, Kovacs AH, Tecson KM, Enomoto J, Moons P, Cedars AM, on behalf of the APPROACH-IS consortium and International Society for Adult Congenital Heart Disease. Increased intensity of physical activity during sport participation associated with fewer anxiety symptoms. Cardiology in the Young 2019.
22. Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, on behalf of the APPROACH-IS consortium and ISACHD. Physical functioning and quality of life in different congenital heart defects: Comparative analysis in 3,589 patients from 15 countries. Circulation 2019; 140 suppl 1: A16534.
23. Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, W, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, on behalf of the APPROACH-IS consortium and ISACHD. Patient-Reported Outcomes in Adults with Congenital Heart Disease who are Recovering after Hospitalization. 30th International Symposium on Adult Congenital Heart Disease, 11-13 June 2020, Cincinnati (OH), USA